Comment on Living with AutoImmune Diseases by Tawny.
I just found your blog today! I loved reading it. I’ve been having weird rashes and other things for about 10 years. A couple years ago I started having pain in my knees to where I could hardly walk. I fell down the stairs with my baby because they gave out. I waited it out for a while and it wouldn’t go away! I finally went to see our family doctor. I told so many people about my pain, it felt like most people just thought I was crazy and it was in my head. My doctor decided to do some blood work just to see what it possibly be he didn’t give me any info on what he was thinking. “He probably didn’t want to scare me until he knew” they called me a couple days later to come in. They said they couldn’t discuss it over the phone. He sat me down and told me I can back ANA positive. I had NO IDEA what that meant. When he explained I didn’t know still I was scared and worried. He put me on a sliding steroid they made me SO sick! I went back and he asked if it helps. Unfortunately in a way it did help so he basically broke it down for me that my chances “sense it worked” was I had an autoimmune disease. We don’t have a rheumatologist in our city so I had to travel. She said I had Raynaud’s after looking at everything and my blood work. She also put a name to everything else going on, MCTD. She ran blood and the whole 9 yards I was supposed to go follow up but I had an issue with the office and didn’t go. Go me for being stubborn right?! Ugh. I should’ve just gone back. So I was taking steroids and got some shots. It helped the knee pain alot along with the swelling. I haven’t felt well sense I don’t know when. Recently very suddenly the rashes came back along with inflammation in my stomach and then the pain but in my ankles this time! It’s been over a year sense the pain has been this bad. All of the emotional stress is coming back. I’ve been in and out doctor’s and the ER for about a month now. Sometimes I feel like they look at me like I’m crazy. They tell me I don’t have an “official” diagnosis and living where I live I feel like there is no where to turn!
Sorry for the HUGE post. I loved this blog and I am so glad I’m not the only one out there that has been told it’s probably in my head!! ❤