Comment on Living with AutoImmune Diseases by STephanie.
Hey Everyone,
So I am at a loss right now with my health. I am 24 years old and have been awfully sick since I was a child. When I was 5 I had an abscess kidney and was hospitalized for 2 months. When I was 9 I started passing out randomly. I had blood work done, sleep tests done, wore a heart monitor for a month, and everything came back perfectly fine except slight heart murmur. I also had a lot of eating issues as a child. They suggested I was lactose intolerant and I stopped dairy for quite some time and when I was around 10 my mom tried to add dairy back into my diet and I handled it perfectly fine and been eating dairy ever since. My pediatrician suggested I might have Addisons disease except he said I was way too young to diagnose. I have also always had chronic kidney infections (sometimes to the extreme of urinating blood) so my urologist put me on a long term antibiotics and blamed it on damage done from the abscess when I was a child. I was also down and depressed as a child therefore I have always been on some kind of anti depressants to try to help my mood. I was always very sick as a child as well, any cold that went around I got especially strep throat. I was rushed to the ER in middle school from my tonsils becoming so swollen I could not breather. I had an emergency tonsillectomy and luckily have had no problems with my throat since then.
I am now 24 years old and my health is worse then its ever been. I have rapidly lost 35 lbs in 6 months ( I am 5’8 weighing 106 lbs now), I was throwing up everyday. My doctor suggested an EGD- so I had an EGD done and they found H plyori bacteria and barrett’s esophagus. I went through the TERRIBLE treatment for H. Plyori Bacteria and started taking protonics for the barretts esophagus. I am no longer throwing up but now other symptoms are occurring. My fingers tips randomly go numb, my stomach is almost always in pain to the point I don’t even want to eat, I get TERRIBLE headaches that only weed seem to help with, I am loosing my hair, and have a dry, crocodile rash under my eyes. My body randomly aches and feels heavy for no reason. Some days I feel like its impossible to get out of bed. I have seen a dermatologist, urologist, cardiologist, neurologist, and not one single doctor can explain what is going on. Some have even told me my lab work comes back fine and maybe I need to go to counseling. IT IS NOT IN MY HEAD! I am a shell of the person I use to be. I have scheduled an appointment with a rheumatologist and am praying I can get some answers. Has anyone else ever had symptoms like this or does anyone have any advice?