Comment on Living with AutoImmune Diseases by Debbie Nance.
I have lived with this for 6 years now. I, too, have a wonderful husband who doesn’t complain, loves me unconditionally, and helps/does everything I’m unable to do. My hair is breaking off, my joints ache so terribly I want to(and do)cry. The PAIN. I’m so tired and achy. I take sleeping meds, yet I’m up until 4-6a.m. before I fall asleep. Cleaners and most lotions burn my skin and make me swell. Smells are so intense they make me nauseated…and my mom, before she passed, said I was just fat and lazy. And told my kids I am a faker. WHO WLD CHOOSE THIS??? My children don’t include me in anything anymore. My mom passed away thinking I was a disgusting person. I’ve always been a hard worker. A go-getter. A problem solver. I actually have a genius IQ of 150. Now I can’t put 5 words together. It is aggravating beyond words (that I can’t remember,lol)&very embarrassing. I no longer leave the house. I feel embarrassed and ashamed. I feel ugly and deal with feelings of self loathing and disgust. I wish the people I love most in this word didn’t think I’m unworthy. Faking. Etc. Thanks for the post, Barb. I hope you enjoy NYC. And ty for sharing your story.