Comment on Living with AutoImmune Diseases by Ellenann.
I have lived (struggled) with severe fibromyalgia most of my life. Interestingly, I had a similar experience with an endocrinologist, who literally leaned over his desk and almost ripped my face off when I attempted to explain my symptoms. I only wish I had the guts to let him have it like you did! Following that appointment, he sent a note to my General Practitioner, stating that I was “crazy”. I should add that soon after, I was found to have a very large benign brain tumor! Six weeks in hospital following a six and a half hour brain surgery and almost total paralysis, I remained in rehab for three months, fighting back to learn basic functions again. For years, my saving grace was having a PA who practiced in a rheumatology office. She actually LISTENS when you have an appointment! Imagine that!!! Have you seen a rheumatologist? I feel your pain, truly. I know there are very few good days, but it does sound like you have a strong support system, which is so critical. I wish you only the best with your journey.
Ellenann Also Commented
Living with AutoImmune Diseases
Thank you for your kind words, Barb. While I will never be the same, I’m actually pretty darned close. With the exception of not being able to work or drive anymore, I have a little difficulty walking due to poor balance and have great difficulty with climbing stairs. I am thankful for every minute I have with my family and for each day I’m able to breathe and walk. I feel very blessed. I pray you find answers to your illness and providers who treat you well.